Brain tumour pathway

Patient information factsheet

What is a brain tumour?

• Brain tumours can be caused by different diseases. They can be caused by cancer, but also other conditions. Non-cancer tumours are called ‘benign’ tumours.
• This is why it is really important to investigate thoroughly and promptly to find a diagnosis.

Next steps

• You will be referred for an oncology assessment.
• The oncology team is a specialised team of Doctors and Nurses who provide rapid assessment and care for patients with different types of tumours or cancer.
• They will coordinate two more scans: an MRI (magnetic resonance imaging) brain scan, and a CT (computerised tomography) scan of your whole body.
• We aim for these scans to be completed within two working days.
• Then, you will be referred on to the right highly specialised team depending on what we think you have. The specialist team will discuss your case in their team meeting. This process can take up to two weeks.

Will I be started on medication?

• You will likely be started on a steroid (anti-inflammatory) medication called dexamethasone. This aims to reduce the swelling in the brain caused by the tumour. It can improve your symptoms.
• Dexamethasone has some notable side effects:
  • Increased risk of stomach ulcers. We will give you a medication called Lansoprazole to prevent this.
  • Anxiety, mood changes, insomnia.
  • High blood sugars. The oncology team will need to check your blood sugar level when they see you. They do this by taking a finger prick to sample your blood.
  • Increased risk of infections.
• If you have any concerns, please use the contact numbers below or attend A&E.

What happens if I experience new symptoms once I am home?

• If you experience any new symptoms, it is important for you to urgently seek medical attention either through attending A&E (if overnight) or the Ambulatory Care department (during the day).
• New symptoms could include: headaches, vomiting, weakness, numbness, changes to your speech, seizures or fits, drowsiness, changes in vision.
• The Acute Oncology Service runs from Monday to Friday 9am to 5pm. They can be contacted on 07826 970 128 if you have any queries.
• Ambulatory Care runs every day (including weekends) 8am to 8pm. Please contact ambulatory care on 020 7288 5940 if you are unwell and need medical attention.

How to contact our services

• During weekdays contact the Acute Oncology Service on 07826 970 128 (Monday to Friday 9am to 5pm).
• During weekdays and weekend days contact Ambulatory Care on 020 7288 5940 (Every day 8am to 8pm).
• And there is a Macmillan advice line (available 7 days a week, 8am to 8pm): 0808 808 00 00.