NCL Red Cell Community Service

The NCL Red Cell Community Team is located in Holloway and the team operates from various locations within NCL.

 

This new specialist nursing care will support red cell patients in their own homes with close links to primary, specialist, social and community care to join up services and create a seamless experience for patients.

 

This service is a source of support, clinical care, advice, and advocacy for people with red cell disorders and their families. Our community service focuses on the individual and what they need at that point in time. It also recognises that these needs can change and be unpredictable. We will address the physical, emotional, and social needs of patients and families affected by red cell disorders.

 

This service does not replace the role of your hospital team, but works closely alongside them to provide broader, more joined-up support

 

We are dedicated to placing individuals and families affected by sickle cell and thalassaemia at the forefront of our dynamic services. Our holistic approach addresses the multifaceted needs of our patients, ensuring comprehensive support and empowerment.

 

We work in close partnership with North Middlesex Hospital and UCLH and the service will deliver a robust community service within the NCL Boroughs: Barnet, Camden, Enfield, Haringey and Islington.

 

Our service supports individuals of all ages affected by various haemoglobin disorders, including sickle cell disease and thalassaemia.

 

We also provide support to antenatal women with abnormal haemoglobin, referred from UCLH and The Whittington Hospitals, as well as new babies identified through the sickle cell disease newborn screening programme (for referrals please email sicklethalcandi@nhs.net).

 

Additionally, we welcome members of the public seeking information, blood testing, or genetic counselling, offering accessible care and guidance.

 

 

To download our patient leaflet, please click here.

 

 

To download our patient leaflet, please click here.

 

 

Our Sickle Cell Support Group, established in 1989, provides a vital forum for individuals with sickle cell and thalassaemia, as well as their families and carers, within Camden and Islington.

 

Led by an elected executive committee, the group offers peer support, sharing coping strategies and organizing educational talks on health and care services.

 

Monthly meetings at the Sickle Cell and Thalassaemia Centre facilitate social interaction, education, and community engagement.

 

The group meets once a month on the first Friday of the month at the Sickle Cell and Thalassaemia Centre, from 6.00pm to 9.00pm.